My thoughts on living with lipedema and lymphedema…and other stuff


Is fat relevant?

I had heard a part of this quote from author J. K. Rowling before, but just saw it in the context of the entire speech and wanted to share it. Fat-shaming is one of the last abuses in which many people feel justified to participate.

“Fat’ is usually the first insult a girl throws at another girl when she wants to hurt her.⁣

I mean, is ‘fat’ really the worst thing a human being can be? Is ‘fat’ worse than ‘vindictive,’ ‘jealous,’ ‘shallow,’ ‘vain,’ ‘boring,’ or ‘cruel’? Not to me; but then, you might retort, what do I know about the pressure to be skinny? I’m not in the business of being judged on my looks, what with being a writer and earning my living by using my brain…⁣

I went to the British Book Awards, and after the award ceremony I bumped into a woman I hadn’t seen for nearly three years. The first thing she said to me? ‘You’ve lost a lot of weight since the last time I saw you!’⁣

‘Well,’ I said, slightly nonplussed, ‘the last time you saw me I’d just had a baby.’⁣

What I felt like saying was, ‘I’ve produced my third child and my sixth novel since I last saw you. Aren’t either of those things more important, more interesting, than my size?’ But no – my waist looked smaller! Forget the kid and the book: finally, something to celebrate!⁣

I have two daughters who will have to make their way in this skinny-obsessed world, and it worries me because I don’t want them to be empty-headed, self-obsessed, emaciated clones; I’d rather they were independent, interesting, idealistic, kind, opinionated, original, funny – a thousand things, before ‘thin.’ And frankly, I’d rather they didn’t give a gust of stinking chihuahua flatulence whether the woman standing next to them has fleshier knees than they do. Let my girls be Hermiones, rather than Pansy Parkinsons.”⁣

Credit: @historycoolkids

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About Me

I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.

I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.