My thoughts on living with lipedema and lymphedema…and other stuff


Memoir

  • Loss

    On December 3rd, my cousin, Carol Sue Kaufmann, died. She was 84 and some would say that’s a plenty long life to have lived; but if you knew her, you would think, as I do, “Gone too soon.” She fought a round with cancer in the past couple of years, and it took its toll Continue reading

  • Serendipity

    Last month’s blog post about the loss of Susan (Brooks) Sabo revealed some interesting coincidences and connections. I was friends “in person” with Susan from 1984 to about 1997 (?) when we both lived in Los Angeles. She first lived in Northridge, and then moved between various apartments, mostly centered around Sherman Oaks/Studio City, and Continue reading

  • Susan

    My friend Susan Sabo died yesterday. I can scarcely take it in. I knew she had cancer—she has posted freely and revealingly about it on her Facebook page since her diagnosis in October of last year. We saw the port, the chemo sessions, the hair loss, and of course all the fashion dictated by the Continue reading

About Me

I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.

I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.