Pondering
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ACCESS granted…
I finally received my ACCESS identity card that will enable me to schedule rides in easily accessible vehicles to get to my doctor’s appointments, art seminars, or whatever. As the office had indicated, it took until late February to arrive, but now that I have it in hand, I can start thinking about leaving the Continue reading
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Feeling useless…and fragile
I had kind of a meltdown yesterday and, in the wake of that, today has been a total waste in terms of any kind of accomplishment. So I’m not in the best place in this moment. There are also circumstances that are making it worse: I haven’t had a functioning furnace for several years now, Continue reading
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Is Mercury retrograde?!
So…Tuesday I get an email from LADWP that I have a possible water leak, because my meter is spinning and I have a bill currently in excess of $1,000! I call my plumber, the curmudgeonly but wonderful Richard of Chicago Plumbing (exhibiting his stubborn nature by insisting on continuing to call it that even though Continue reading
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Good news
Today was my appointment with the cardiologist at Northridge Hospital to receive my electrical cardiogram treatment to shock my heart from AFib back into a normal rhythm. Kirsten and I both got up, as she says, “at the crack,” and she picked me up at 7:20 for an 8:30 check-in time. We arrived with plenty Continue reading
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Adjusting
It’s been a couple of years now of worsening symptoms and issues, and I am still not understanding how people do this. I mean, there are people with much worse disabilities than mine, who are still working full-time and keeping things together, so why am I finding this so ridiculously hard? I’m used to being Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 