Condition
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Terrible horrible morphs…
…into uncomfortable and annoying. I am continuing to blister and peel, the red has further decreased and become more pale, and the heat is mostly gone from my leg; but the nurse from the hospital visited today and opined that there was still infection happening, so she has called in another prescription for antibiotics (a… Continue reading
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The terrible horrible continues…
…and grows exponentially. I just wrote a letter to the hospital’s Grievance Committee about it, because they responded to my evaluation of their services that original day in the ER by attempting to exonerate themselves from all responsibility and I am appealing their decision, so parts of this are taken from that letter, since I… Continue reading
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Terrible, horrible, the third chapter
I have limited energy, so I’m going to get through this as fast as possible. I remembered on Wednesday (when I was feeling worse) that while the firefighters and I were waiting around for the large gurney, one of them commented that they had a unit called Advanced Practitioner Team who would visit and assess… Continue reading
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Melissa and the terrible, horrible, no good, very bad day…part one
Some people will read parts of this and think that I am a privileged person who expects the world to revolve around me. Think what you like. I’m still going to say this. I have been sick. Last Thursday afternoon I suddenly had convulsive shivering that lasted for a couple of hours, after which I… Continue reading
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How life can change…
Ten years ago on this date (according to Facebook), I got up at 7 a.m., hauled everything out of my garden shed, hosed it out, scrubbed down the wood with Murphy’s Oil Soap, rinsed, swept out the water, and left it to dry, whilst going in to make breakfast at 9:15. Then I spent a… Continue reading
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Criteria for a visit to the doctor
Today I went to a new doctor for an exam/procedure I’m not going to discuss here “out loud,” but it made me think about what is needed by people in my situation (weighed down by both fibrotic fat and lymphatic fluid), and I’m hoping that it also made the people with whom I met today… Continue reading
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Consequences
I don’t know how to write this without sounding self-pitying or aggrieved, but I feel like I have to get it out, so… One of the worst parts of the loss of mobility that you don’t really think about when you are considering all the physical limitations is the emotional and actual isolation that ensues… Continue reading
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Living at the mercy of the USPS
When you stay inside your house as much as I do now, you become overly reliant on anybody who delivers, whether it be Amazon, DoorDash, Instacart or, yes, the United States Postal Service. And while I have had fairly good luck with the first three, the good ole USPS ain’t what she used to be,… Continue reading
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Limitations and solutions
Last week, the kid who waters all the flower beds in my yard, front and back, came on Monday night and then agreed that he would be back on Thursday afternoon. Thursday afternoon came and went, and he didn’t show, so I texted him and he said he’d come after work. (He got a job… Continue reading
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It’s a start…?
The Lipedema Foundation has published a blog post entitled “10 things you should know ” in an attempt to raise awareness about lipedema and how it differs from obesity. I have shared it on my Facebook page, and hope that it gives people a clue about what this condition means for those of us who… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 