inflammation
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Healthcare via social media
Here is what happens when doctors remain uneducated about your specific condition for more than 85 years after the first mention of it in a medical journal: You start taking advice from people on Facebook. Lipoedema was first mentioned in medical journals, as far as I can discover, in the 1940s. And there is some… Continue reading
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The long slow road to healing
I’m still here, still spending most of my time on my reclining sofa with my legs up, still tired, still frustrated and kinda bored. It’s been about three weeks since I left the hospital, but I am far from past this episode. After a week of talking about it and promising to come but not… Continue reading
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How life can change…
Ten years ago on this date (according to Facebook), I got up at 7 a.m., hauled everything out of my garden shed, hosed it out, scrubbed down the wood with Murphy’s Oil Soap, rinsed, swept out the water, and left it to dry, whilst going in to make breakfast at 9:15. Then I spent a… Continue reading
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New year, new provider. Whoopee.
On December 24th, I took my last shot of four of the 5mg Zepbound, and then put in for my next dose, asking to titrate up to 7.5mg. But Walgreens ignored the note on the prescription request and ordered 5mg pens. When they notified me it was in, I called them and was told that… Continue reading
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Still waiting
I got to my #4 dose of the month a couple of weeks ago (Zepbound), opened the box, and…it wasn’t there. I apparently got a box with only three doses instead of four. I didn’t notice it because the box comes with an instruction booklet inside that I hadn’t removed, and it obscured the fourth… Continue reading
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Waiting…
I took the Zepbound at a dose of 2.5 mg for the first month, and last Monday I bumped up to the 5 mg dose for the month of November. Next time it will be 7.5. I’m still waiting for some effect. I did have about a week in the middle of last month in… Continue reading
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Taking the “before” photos
Today, Kirsten went to Walgreens to pick up my first month’s Zepbound prescription, and I injected myself for week one this afternoon. It’s no big deal—sort of a spring-loaded syringe that pops once when you push the button and again a few seconds later once the entire dose is delivered, with hardly a twinge. I… Continue reading
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Doctor accountability
I never thought I would write this post about this doctor. And I’m not going to name names, but I am going to say what I am feeling, and I am going to share this link with her. Because what I feel is complicated, but the overriding emotion is betrayal. The story will take some… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 