Condition
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Last bastion
I have stated so many times that I’m sick of myself that I believe obesity is the last condition about which people feel free to be bigots. People who would never dream of mocking someone for their ethnicity, sexual orientation, religious preference, or any other of the “protected classes” don’t seem to hesitate when it… Continue reading
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Encouraged on several fronts
Things are happening—some by chance, some purposefully, all fairly positive, some even hopeful. First of all, I “met” Carol on Facebook in one of the lipoedema/lymphedema groups I follow, after she reported a seemingly miraculous transformation illustrated by pictures that were hard to believe. She, like me, has both lipoedema and lymphedema, and she, like… Continue reading
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Feeling useless…and fragile
I had kind of a meltdown yesterday and, in the wake of that, today has been a total waste in terms of any kind of accomplishment. So I’m not in the best place in this moment. There are also circumstances that are making it worse: I haven’t had a functioning furnace for several years now,… Continue reading
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Good news
Today was my appointment with the cardiologist at Northridge Hospital to receive my electrical cardiogram treatment to shock my heart from AFib back into a normal rhythm. Kirsten and I both got up, as she says, “at the crack,” and she picked me up at 7:20 for an 8:30 check-in time. We arrived with plenty… Continue reading
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Adjusting
It’s been a couple of years now of worsening symptoms and issues, and I am still not understanding how people do this. I mean, there are people with much worse disabilities than mine, who are still working full-time and keeping things together, so why am I finding this so ridiculously hard? I’m used to being… Continue reading
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Excessive caution?
Today I was scheduled to get a CT-scan of my abdomen and pelvis to show my doctor whether or not the kidney stone has left the building. I was scheduled at the radiology department at Northridge Hospital at 11 a.m., and my cousin Kirsten kindly came with me. Our plan for the day was to… Continue reading
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Myopia
Myopia is the “fancy” word for nearsightedness, a condition in which close-up objects are clear, but things that are farther away appear blurry. Tonight I have been ruminating on the other, less flattering, metaphorical meaning of the word, which is “lack of imagination, foresight, or intellectual insight,” as exhibited by my current lot of doctors. Hell,… Continue reading
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And now I wait.
Kaylin showed up on Wednesday with the correct size and model lymphapress (plus the extensions) for my right leg, and I was finally able to have my test. The sensation is not unpleasant—there are chambers inside the envelope and, starting with the foot, it inflates and squeezes in an eight-part series up the leg to… Continue reading
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I’m up…
I came across this meme recently on Facebook and immediately saved it for myself. Although I am not Norwegian, I completely agree with their sometimes low standard for daily check-ins: Things have transpired, some good, some bad, some that just are, since I last posted. The visiting physical therapist with whom I had a conversation… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 