Uncategorized
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Discouragement
After four months of success using the Fabrifoam Superwrap bandages on my lower legs to reduce my lymphedema, they have suddenly quit working. My legs are still wrapped 24/7, but they are swelling anyway, pushing on the bandages until they become tighter and more uncomfortable, instead of looser as the fluids diminish. I have no Continue reading
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Is fat relevant?
I had heard a part of this quote from author J. K. Rowling before, but just saw it in the context of the entire speech and wanted to share it. Fat-shaming is one of the last abuses in which many people feel justified to participate. “Fat’ is usually the first insult a girl throws at Continue reading
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It’s a start…?
The Lipedema Foundation has published a blog post entitled “10 things you should know ” in an attempt to raise awareness about lipedema and how it differs from obesity. I have shared it on my Facebook page, and hope that it gives people a clue about what this condition means for those of us who Continue reading
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Fat as I am
Some days, you just need to go with a little humor…https://youtu.be/35zeESzNP0c?si=LufA6o8gWwJz6hOu Continue reading
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Chemistry, lethargy, life
Two nights with little sleep have left me glassy-eyed and breathless, so heavy from the excess fluid in my system that it’s hard to move or think. It sets me to wondering about the conundrum of the chicken or the egg: They say that lack of sleep drives up the cortisol in your system, and Continue reading
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Experiments, long overdue
I lately, finally, made the decision to put my health first (and get over being angry about it). I went back to see what seems to be the sole doctor on the West Coast who knows what lipedema is and also specializes in the treatment of lymphedema, and when she discovered I had, yet again, Continue reading
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The indignities we endure
Today I had an appointment with a new doctor, and it went about like they all do. This doctor was a dermatologist, and I was going for multiple reasons, the first one being that my primary doctor wanted someone with more experience to look at the skin on my very swollen lower legs and the Continue reading
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Not what anyone expects
The problem with having a condition, as opposed to an illness, is that it is not what we’ve been brought up to expect. In our childhood we contract various things—from the common cold up to measles, mumps, or an outbreak of salmonella that arrives courtesy of pollution of the city’s drinking water (yes, that happened Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 