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Encouraged on several fronts
Things are happening—some by chance, some purposefully, all fairly positive, some even hopeful. First of all, I “met” Carol on Facebook in one of the lipoedema/lymphedema groups I follow, after she reported a seemingly miraculous transformation illustrated by pictures that were hard to believe. She, like me, has both lipoedema and lymphedema, and she, like… Continue reading
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ACCESS granted…
I finally received my ACCESS identity card that will enable me to schedule rides in easily accessible vehicles to get to my doctor’s appointments, art seminars, or whatever. As the office had indicated, it took until late February to arrive, but now that I have it in hand, I can start thinking about leaving the… Continue reading
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Fat as I am
Some days, you just need to go with a little humor…https://youtu.be/35zeESzNP0c?si=LufA6o8gWwJz6hOu Continue reading
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Transpo is in my future…I hope!
Today I finally had my appointment with ACCESS, the Los Angeles County service that will pick you up in a van with a ramp and take you places if you need a ride and can’t drive yourself. I had an appointment almost two months ago, but the drivers went on strike and the office workers… Continue reading
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Feeling useless…and fragile
I had kind of a meltdown yesterday and, in the wake of that, today has been a total waste in terms of any kind of accomplishment. So I’m not in the best place in this moment. There are also circumstances that are making it worse: I haven’t had a functioning furnace for several years now,… Continue reading
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Loss
On December 3rd, my cousin, Carol Sue Kaufmann, died. She was 84 and some would say that’s a plenty long life to have lived; but if you knew her, you would think, as I do, “Gone too soon.” She fought a round with cancer in the past couple of years, and it took its toll… Continue reading
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The song of the utilities, cont.
It’s the following Friday, and plumbers still invade my home. But they are doing all good things, and I am grateful! It took them three days to repipe from galvanized to copper, locating a couple more leaks along the way (these pipes were disintegrating in place!), and then they nicely plastered the two walls they… Continue reading
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Is Mercury retrograde?!
So…Tuesday I get an email from LADWP that I have a possible water leak, because my meter is spinning and I have a bill currently in excess of $1,000! I call my plumber, the curmudgeonly but wonderful Richard of Chicago Plumbing (exhibiting his stubborn nature by insisting on continuing to call it that even though… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 