Condition
-
Adjusting
It’s been a couple of years now of worsening symptoms and issues, and I am still not understanding how people do this. I mean, there are people with much worse disabilities than mine, who are still working full-time and keeping things together, so why am I finding this so ridiculously hard? I’m used to being Continue reading
-
Excessive caution?
Today I was scheduled to get a CT-scan of my abdomen and pelvis to show my doctor whether or not the kidney stone has left the building. I was scheduled at the radiology department at Northridge Hospital at 11 a.m., and my cousin Kirsten kindly came with me. Our plan for the day was to Continue reading
-
Myopia
Myopia is the “fancy” word for nearsightedness, a condition in which close-up objects are clear, but things that are farther away appear blurry. Tonight I have been ruminating on the other, less flattering, metaphorical meaning of the word, which is “lack of imagination, foresight, or intellectual insight,” as exhibited by my current lot of doctors. Hell, Continue reading
-
And now I wait.
Kaylin showed up on Wednesday with the correct size and model lymphapress (plus the extensions) for my right leg, and I was finally able to have my test. The sensation is not unpleasant—there are chambers inside the envelope and, starting with the foot, it inflates and squeezes in an eight-part series up the leg to Continue reading
-
I’m up…
I came across this meme recently on Facebook and immediately saved it for myself. Although I am not Norwegian, I completely agree with their sometimes low standard for daily check-ins: Things have transpired, some good, some bad, some that just are, since I last posted. The visiting physical therapist with whom I had a conversation Continue reading
-
Not what anyone expects
The problem with having a condition, as opposed to an illness, is that it is not what we’ve been brought up to expect. In our childhood we contract various things—from the common cold up to measles, mumps, or an outbreak of salmonella that arrives courtesy of pollution of the city’s drinking water (yes, that happened Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 