My thoughts on living with lipedema and lymphedema…and other stuff


Diagnosis

  • Holy plot twist, Batman!

    I can hardly believe it’s been eight days since that last post, or what has happened in that time. Turns out I was correct to be concerned about not ridding myself of copious amounts of fluid; after two one-hour sessions per day with the Lympha Press on Wednesday, Thursday, and Friday of last week, I… Continue reading

  • (Lack of) initiative

    I was watching TV last night, and a commercial came on—one of those Big Pharma pitches for some medication that would miraculously clear up whatever persistent condition from which you are suffering—and something about it struck hard. This was the one where the lady has thyroid eye disease and has lived for most of her… Continue reading

  • A positive experience

    Well, the squeamish dermatologist did me a big favor. I mentioned in my previous post (“The indignities we endure,” June 13) that she didn’t seem interested in looking at, touching, or pronouncing on the state of my lower legs, i.e., the lymphorrhea about which I visited her on my doctor’s recommendation…but then she mentioned a… Continue reading

  • Not what anyone expects

    The problem with having a condition, as opposed to an illness, is that it is not what we’ve been brought up to expect. In our childhood we contract various things—from the common cold up to measles, mumps, or an outbreak of salmonella that arrives courtesy of pollution of the city’s drinking water (yes, that happened… Continue reading

About Me

I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.

I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.