kindness
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Criteria for a visit to the doctor
Today I went to a new doctor for an exam/procedure I’m not going to discuss here “out loud,” but it made me think about what is needed by people in my situation (weighed down by both fibrotic fat and lymphatic fluid), and I’m hoping that it also made the people with whom I met today Continue reading
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Pushing through
I’m starting to understand that living with reduced mobility means that you have to be a problem-solver, every day and sometimes minute to minute. I’m also realizing that I have been letting my circumstances dictate too much of my daily routine, and I have to start pushing through the obstacles to live a more normal Continue reading
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Living at the mercy of the USPS
When you stay inside your house as much as I do now, you become overly reliant on anybody who delivers, whether it be Amazon, DoorDash, Instacart or, yes, the United States Postal Service. And while I have had fairly good luck with the first three, the good ole USPS ain’t what she used to be, Continue reading
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Saddened
You will remember me talking extensively about my new mentor Carol in a previous post in late April. She’s the one who has led the way by example to reduce the swelling in her legs by a combination of wrapping with Fabrifoam, changing her diet, and taking various supplements to level out chemical imbalances, reduce Continue reading
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Cautious optimism
I may have found a doctor who actually gets it and knows what to do about it. Not celebrating yet, but… I went back to the vascular specialist yesterday, only to discover that the lab hadn’t forwarded the results of my CT scan yet (despite having a week to do so). Both I and the Continue reading
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Encouraged on several fronts
Things are happening—some by chance, some purposefully, all fairly positive, some even hopeful. First of all, I “met” Carol on Facebook in one of the lipoedema/lymphedema groups I follow, after she reported a seemingly miraculous transformation illustrated by pictures that were hard to believe. She, like me, has both lipoedema and lymphedema, and she, like Continue reading
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A positive experience
Well, the squeamish dermatologist did me a big favor. I mentioned in my previous post (“The indignities we endure,” June 13) that she didn’t seem interested in looking at, touching, or pronouncing on the state of my lower legs, i.e., the lymphorrhea about which I visited her on my doctor’s recommendation…but then she mentioned a Continue reading
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The indignities we endure
Today I had an appointment with a new doctor, and it went about like they all do. This doctor was a dermatologist, and I was going for multiple reasons, the first one being that my primary doctor wanted someone with more experience to look at the skin on my very swollen lower legs and the Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 