My thoughts on living with lipedema and lymphedema…and other stuff


Terrible horrible morphs…

…into uncomfortable and annoying. I am continuing to blister and peel, the red has further decreased and become more pale, and the heat is mostly gone from my leg; but the nurse from the hospital visited today and opined that there was still infection happening, so she has called in another prescription for antibiotics (a lesser dose) for a further seven days. I’m going to take it, because although I believe I am continuing to heal, I will do anything not to go back to the hospital. But I shudder to think what it’s doing to the good bacteria in my body. I’m going to get onto a dose of probiotics as a counter effort asap.

She also told me there is a wound care clinic at the hospital (Valley Presbyterian) just two miles from me, so I’m going to check that out when I’m a little more mobile. I continue rather tired and unfocused; I can only assume it has to do with my body putting all its energy into my legs and therefore curtailing other activities like engaging my brain! I am unable to sit up for long without incurring pain in my left leg, so I’m trying to keep my meals and computer sessions limited to 40 minutes at a time; the rest I am spending on my sofa, which is incredibly wearying. You can only watch so much TV; I am at a bad angle to try to read, but if I sit up in a comfortable position, it bothers my leg, so I am only reading during meals at the kitchen table. And I am frustrated, of course, that I am unable to paint!

I probably won’t write more about any of this until I get a response to my letter from the hospital or decide to take other action. Now, it’s about the long slow process of getting past this and back to a more normal existence. Funny how normal was a drag until something worse happened! Thanks to everyone for their comments and concern. It’s nice to know someone is listening.

One response to “Terrible horrible morphs…”

  1. I can understand your frustration – it took me a year to recover from my cancer surgery. I couldn’t drive, grocery shop, had to have all my prescriptions delivered and I had my dear Gertie who wanted to go for walks all the time. Thought I would lose my mind. I dearly hope the best for you. SOON

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About Me

I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.

I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.