mobility
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Terrible, horrible, the third chapter
I have limited energy, so I’m going to get through this as fast as possible. I remembered on Wednesday (when I was feeling worse) that while the firefighters and I were waiting around for the large gurney, one of them commented that they had a unit called Advanced Practitioner Team who would visit and assess… Continue reading
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Terrible horrible, part two
Taking up where we left off… Because of all the waiting and gurney-fetching, we didn’t arrive at the hospital until around 3:00. (I think I called at 1:45?) We sat in the hallway a while longer and I finally said to the firemen, This is ridiculous that I’m tying you up here just because you… Continue reading
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Melissa and the terrible, horrible, no good, very bad day…part one
Some people will read parts of this and think that I am a privileged person who expects the world to revolve around me. Think what you like. I’m still going to say this. I have been sick. Last Thursday afternoon I suddenly had convulsive shivering that lasted for a couple of hours, after which I… Continue reading
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Still waiting
I got to my #4 dose of the month a couple of weeks ago (Zepbound), opened the box, and…it wasn’t there. I apparently got a box with only three doses instead of four. I didn’t notice it because the box comes with an instruction booklet inside that I hadn’t removed, and it obscured the fourth… Continue reading
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Waiting…
I took the Zepbound at a dose of 2.5 mg for the first month, and last Monday I bumped up to the 5 mg dose for the month of November. Next time it will be 7.5. I’m still waiting for some effect. I did have about a week in the middle of last month in… Continue reading
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Taking the “before” photos
Today, Kirsten went to Walgreens to pick up my first month’s Zepbound prescription, and I injected myself for week one this afternoon. It’s no big deal—sort of a spring-loaded syringe that pops once when you push the button and again a few seconds later once the entire dose is delivered, with hardly a twinge. I… Continue reading
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I got it!
(See previous post for the whole story.) My doctor’s office finally called me back last Monday, and made a telephone appointment for me with the doctor for three days later (on the 17th). I have to say that my opinion was not materially changed by this interaction; in fact, I felt like she was gaslighting… Continue reading
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Doctor accountability
I never thought I would write this post about this doctor. And I’m not going to name names, but I am going to say what I am feeling, and I am going to share this link with her. Because what I feel is complicated, but the overriding emotion is betrayal. The story will take some… Continue reading
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Criteria for a visit to the doctor
Today I went to a new doctor for an exam/procedure I’m not going to discuss here “out loud,” but it made me think about what is needed by people in my situation (weighed down by both fibrotic fat and lymphatic fluid), and I’m hoping that it also made the people with whom I met today… Continue reading
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An Indictment of Rite-Aid
I take the drug Eliquis, a blood thinner, to prevent formation of blood clots. I have previously developed at least two blood clots, and since I have two conditions (lipedema and lymphedema) that make me prone to them, my doctor tells me I will be on a permanent dose. I have my prescription registered at… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 