Emotions
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Terrible horrible, part two
Taking up where we left off… Because of all the waiting and gurney-fetching, we didn’t arrive at the hospital until around 3:00. (I think I called at 1:45?) We sat in the hallway a while longer and I finally said to the firemen, This is ridiculous that I’m tying you up here just because you… Continue reading
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Disturbing the peace
One should never wonder, out loud or in print, how things could possibly get worse, because inevitably they do. Things got worse here about three weeks ago, and they were already pretty chaotic. Backing up a bit: A couple of months ago, the people who own the neighboring house (on the side of both my… Continue reading
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How life can change…
Ten years ago on this date (according to Facebook), I got up at 7 a.m., hauled everything out of my garden shed, hosed it out, scrubbed down the wood with Murphy’s Oil Soap, rinsed, swept out the water, and left it to dry, whilst going in to make breakfast at 9:15. Then I spent a… Continue reading
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New year, new provider. Whoopee.
On December 24th, I took my last shot of four of the 5mg Zepbound, and then put in for my next dose, asking to titrate up to 7.5mg. But Walgreens ignored the note on the prescription request and ordered 5mg pens. When they notified me it was in, I called them and was told that… Continue reading
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I got it!
(See previous post for the whole story.) My doctor’s office finally called me back last Monday, and made a telephone appointment for me with the doctor for three days later (on the 17th). I have to say that my opinion was not materially changed by this interaction; in fact, I felt like she was gaslighting… Continue reading
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Doctor accountability
I never thought I would write this post about this doctor. And I’m not going to name names, but I am going to say what I am feeling, and I am going to share this link with her. Because what I feel is complicated, but the overriding emotion is betrayal. The story will take some… Continue reading
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Preoccupied by politics
I have been incredibly lax in keeping up this blog, for two reasons: The first is that my physical condition doesn’t really change much, unless it’s to get marginally worse with every month that passes. My bandages are still not working to deflate my legs—all the fluid between toes and knees simply shifts up and… Continue reading
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Consequences
I don’t know how to write this without sounding self-pitying or aggrieved, but I feel like I have to get it out, so… One of the worst parts of the loss of mobility that you don’t really think about when you are considering all the physical limitations is the emotional and actual isolation that ensues… Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 