Condition
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Criteria for a visit to the doctor
Today I went to a new doctor for an exam/procedure I’m not going to discuss here “out loud,” but it made me think about what is needed by people in my situation (weighed down by both fibrotic fat and lymphatic fluid), and I’m hoping that it also made the people with whom I met today Continue reading
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Consequences
I don’t know how to write this without sounding self-pitying or aggrieved, but I feel like I have to get it out, so… One of the worst parts of the loss of mobility that you don’t really think about when you are considering all the physical limitations is the emotional and actual isolation that ensues Continue reading
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Living at the mercy of the USPS
When you stay inside your house as much as I do now, you become overly reliant on anybody who delivers, whether it be Amazon, DoorDash, Instacart or, yes, the United States Postal Service. And while I have had fairly good luck with the first three, the good ole USPS ain’t what she used to be, Continue reading
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Limitations and solutions
Last week, the kid who waters all the flower beds in my yard, front and back, came on Monday night and then agreed that he would be back on Thursday afternoon. Thursday afternoon came and went, and he didn’t show, so I texted him and he said he’d come after work. (He got a job Continue reading
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It’s a start…?
The Lipedema Foundation has published a blog post entitled “10 things you should know ” in an attempt to raise awareness about lipedema and how it differs from obesity. I have shared it on my Facebook page, and hope that it gives people a clue about what this condition means for those of us who Continue reading
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Last bastion
I have stated so many times that I’m sick of myself that I believe obesity is the last condition about which people feel free to be bigots. People who would never dream of mocking someone for their ethnicity, sexual orientation, religious preference, or any other of the “protected classes” don’t seem to hesitate when it Continue reading
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Encouraged on several fronts
Things are happening—some by chance, some purposefully, all fairly positive, some even hopeful. First of all, I “met” Carol on Facebook in one of the lipoedema/lymphedema groups I follow, after she reported a seemingly miraculous transformation illustrated by pictures that were hard to believe. She, like me, has both lipoedema and lymphedema, and she, like Continue reading
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Feeling useless…and fragile
I had kind of a meltdown yesterday and, in the wake of that, today has been a total waste in terms of any kind of accomplishment. So I’m not in the best place in this moment. There are also circumstances that are making it worse: I haven’t had a functioning furnace for several years now, Continue reading
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Good news
Today was my appointment with the cardiologist at Northridge Hospital to receive my electrical cardiogram treatment to shock my heart from AFib back into a normal rhythm. Kirsten and I both got up, as she says, “at the crack,” and she picked me up at 7:20 for an 8:30 check-in time. We arrived with plenty Continue reading
About Me
I started this blog to talk about a genetic, fibrotic fat-storing (some say autoimmune) condition called Lipoedema, which is something I began to experience in my 60s, although some see early onset at puberty, or post-pregnancy, or at menopause. The other “L” condition from which I suffer is Lymphedema, as a common secondary effect of the fibrosis that blocks lymphatic drainage. Despite the fact that one in 11 women suffer from lipoedema, most doctors have never heard of it, so on top of the pain and embarrassment of this extremely obvious malady, millions of us are out there being fat-shamed for a condition that isn’t contingent on diet or exercise for its growth. This blog was intended to share my reactions.
I have, however, reserved the right to discuss “other stuff” here and, increasingly, since January 20th, 2025, that is politics, because what else, after all, are we legitimately obsessed with in this age of fascism in these United States of America? So while the “theme” of this blog may be confusing, it is my blog, where I can talk about whatever I wish. You are not constrained to read the parts you don’t like. But I feel compelled to write about them.
MEdoubleLL 